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Dryad

Scores on independence, quality of life, and satisfaction on visual mapping software intervention in children with Down syndrome

Cite this dataset

Han, Samuel Sangyoon (2023). Scores on independence, quality of life, and satisfaction on visual mapping software intervention in children with Down syndrome [Dataset]. Dryad. https://doi.org/10.5061/dryad.12jm63z2w

Abstract

Enhancing independence and quality of life are key modifiable outcomes that are short- and long-term goals for children with Down syndrome and for their parents. Here we report the outcome of a 4-week feasibility study in a cohort of 26 children with Down Syndrome, 7–17 years old, who used an assistive technology approach that incorporated smart device software and step-by-step pictures (the MapHabit System). Parents reported improvements in children’s activities of daily living, quality of life, and independence. They recommended this technology to other families. This report and its findings underscore the feasibility of using assistive technology in children with Down syndrome within home and family settings.

The current findings that assistive technology can be used successfully and effectively in family and home settings set the stage for more informative systematic studies using assistive technology for this population.

Methods

Data was collected through self-report instruments in electronic form. ABAS-3 data was collected through the WPS Online Evaluation System. Both Quality of Life and Satisfaction instrument data were collected through the REDCap platform.

Funding

National Institute on Aging, Award: R43AG065081