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Cystic Fibrosis Telemedicine in the era of COVID-19 patient and staff surveys

Citation

Rad, Elika et al. (2022), Cystic Fibrosis Telemedicine in the era of COVID-19 patient and staff surveys, Dryad, Dataset, https://doi.org/10.5061/dryad.6m905qg1s

Abstract

The coronavirus disease 2019 (COVID-19) pandemic has resulted in large scale changes to incorporate telemedicine for delivery of care. People with cystic fibrosis (CF) have care considerations that pose challenges to telemedicine; they include frequent visits for pulmonary disease progression, medication management and evaluation by a multidisciplinary team of providers. We share our center’s experience with video visits replacing in-person clinic evaluation, using quality improvement strategies to create a replicable workflow. Key considerations include incorporation of the multidisciplinary team into the visit, limitations of remote delivery of care, as well as patient and staff perceptions of this care model. Results revealed that video visits were convenient, efficacious, and comparable to in-person visits with interest for its continued incorporation into the traditional CF care model.

Methods

The dataset was collected via SurveyMonkey; the respondents were de-identified and anonymous.